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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.


National Eosinophilia Myalgia Syndrome Network


Address

P O Box 4171
Monitor Station
West New York, NJ 07093 USA

Phone

201-868-5791


Description

The National Eosinophilia-Myalgia Syndrome Network (NEMSN) is a non-profit organization founded in 1995 to help eosinophilia myalgia syndrome (EMS) survivors and their families. EMS has been associated with the ingestion of large amounts of contaminated L-tryptophan, a dietary supplement often sold in health food stores. It is a disease of abrupt onset causing severe, disabling, chronic muscle pain, skin symptoms and other neurotoxic reactions. The NEMSN offers patient education, networking and advocacy to patients in the United States, Canada, the UK, Australia, and other areas though the Internet. NEMSN also offers information and education to health professionals.

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