The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.
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The National Health Information Center (NHIC) is a health information referral service sponsored by the Office of Disease Prevention and Health Promotion. NHIC puts health professionals and consumers who have health questions in touch with those organizations that are best able to provide answers. Using a database that contains descriptions of health-related organizations, NHIC staff refer people to the most appropriate resource. Spanish language information specialists are available. NHIC also produces three annual health information directories: Federal Health Information Centers and Clearinghouses, National Health Observances Calendar, and Toll-free Numbers for Health Information.
The National Organization for Rare Disorders (NORD) web site, its databases, and the contents thereof are copyrighted by NORD. No part of the NORD web site, databases, or the contents may be copied in any way, including but not limited to the following: electronically downloading, storing in a retrieval system, or redistributing for any commercial purposes without the express written permission of NORD. Permission is hereby granted to print one hard copy of the information on an individual disease for your personal use, provided that such content is in no way modified, and the credit for the source (NORD) and NORD’s copyright notice are included on the printed copy. Any other electronic reproduction or other printed versions is strictly prohibited.
NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.