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National Lymphedema Network, Inc.


Address

2288 Fulton Street
Suite 307
Berkeley, CA 94704

Phone

510-809-1660

Fax

510-809-1699

800 Number

800-541-3259

Email Address

nln@lymphnet.org

Description

The National Lymphedema Network (NLN) strives to increase awareness of lymphedema and related disorders through education, and promote and support the availability of quality medical treatment for all individuals at risk for or affected by lymphedema. The NLN is dedicated to promoting research into the causes, prevention, and treatment of lymphedema; securing adequate insurance coverage for medically necessary, safe, and effective treatment; and expanding the number and geographical distribution of lymphedema treatment facilities and certified therapists. To achieve these goals, the NLN disseminates information about lymphedema to healthcare professionals so they can appropriately counsel their patients on risk reduction and prescribe safe, effective treatment for those affected by this chronic condition. The NLN further provides educational and awareness information to patients, family members, caregivers, patient advocates, and the general public.

The NLN’s services include its International Conference, publication of its quarterly journal LymphLink as well as original cited research articles and position papers. The Marilyn Westbrook Garment Fund helps patients in need of compression garments, and the lymph eChannel news, NLN Support Group Network, and Resource Hotline link patients and caregivers to resources and peer support.

Additional NLN programs include Lymphedema Awareness Day Awards during March, Lymphedema Awareness Month, advocacy and education materials addressing cancer-related lymphedema, Lymphedema Ambassadors, and the Lymph Science Advocacy Program training.

The NLN works in collaboration with many stakeholders, including Alliance of Wound Care Stakeholders, Breast Cancer Action, EveryLife Foundation Community Congress, Lymphedema Advocacy Group, Lymphology Association of North America, National Organization for Rare Disorders, Patient Assistance Network, and Rare Disease Legislative Advocates.

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