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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.


National Organization for Albinism and Hypopigmentation (NOAH)


Address

PO Box 959
East Hempstead, NH 03826-0959

Phone

6038872310

Fax

8006482310

800 Number

8004732310

Email Address

info@albinism.org

Description

The National Organization for Albinism and Hypopigmentation (NOAH) is a national, voluntary, non-profit organization for people with albinism, their families, and professionals who work with them. Established in 1982, NOAH provides a network of local chapters and contact persons; offers information, support, and appropriate referrals; and promotes public and professional education. The organization also provides networking for those with special interests related to albinism and promotes and supports research that will improve diagnosis and management of albinism and hypopigmentation. Through participating in the Albinism World Alliance, NOAH networks with support groups for people with albinism in other countries and promotes development of albinism support groups throughout the world. NOAH also sponsors workshops, conferences, and outreach programs and offers a variety of educational materials including a regular newsletter, information bulletins, brochures, and information packets for libraries.

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