Scroll
To Top
0-9 A B C D E F G H I J K L M N O P Q R S T U V W X Y Z

*Important

The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.


National PKU News


Address

6869 Woodlawn Avenue NE #116
Seattle, WA 98115-5469

Phone

2065258140

Fax

2065255023

Email Address

sarah@pkunews.org

Description

The National PKU News (NPKUN) is a non-profit organization devoted to providing news and information to all persons involved in the treatment of phenylketonuria (PKU). This is a rare metabolic disorder caused by a deficiency of the liver enzyme phenylalanine hydroxylase. Phenylketonuria is a severe progressive disorder that, if not treated early, can produce mental retardation. Founded in 1989, National PKU News publishes a newsletter three times a year and has approximately 2,000 subscribers from the United States, Canada, and 30 foreign countries. National PKU News also publishes educational materials regarding treatment of PKU. Food lists and cookbooks are also distributed by the organization.

Please Note

The National Organization for Rare Disorders (NORD) web site, its databases, and the contents thereof are copyrighted by NORD. No part of the NORD web site, databases, or the contents may be copied in any way, including but not limited to the following: electronically downloading, storing in a retrieval system, or redistributing for any commercial purposes without the express written permission of NORD. Permission is hereby granted to print one hard copy of the information on an individual disease for your personal use, provided that such content is in no way modified, and the credit for the source (NORD) and NORD’s copyright notice are included on the printed copy. Any other electronic reproduction or other printed versions is strictly prohibited.

NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.