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National Urea Cycle Disorders Foundation


75 South Grand Avenue
Pasadena, CA 91105-1602





800 Number


Email Address

[email protected]


The National Urea Cycle Disorders Foundation (NUCDF) is a voluntary, non-profit organization dedicated to providing information and guidance to families affected by urea cycle disorders; educating health care professionals concerning the diagnosis and treatment of these disorders; and increasing public awareness. Urea cycle disorders are rare genetic disorders in which an enzyme deficiency causes an excessive accumulation of ammonia in the blood. Established in 1989, the National Urea Cycle Disorders Foundation is also committed to promoting and supporting medical research; networking families to promote the exchange of mutual support, information and resources; and educating legislators on the needs of affected families. In addition, the foundation provides appropriate referrals; engages in patient, professional, and community education; and offers educational and supportive information through its national database, directory, biannual newsletter, brochures, and pamphlets. The foundation's goals include creating a national network of families who together can stimulate medical research activities and eventually find a cure for urea cycle disorders.

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