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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.


National Urea Cycle Disorders Foundation


Address

75 South Grand Avenue
Pasadena, CA 91105-1602

Phone

6265780833

Fax

6265780823

800 Number

8003868233

Email Address

info@nucdf.org

Description

The National Urea Cycle Disorders Foundation (NUCDF) is a voluntary, non-profit organization dedicated to providing information and guidance to families affected by urea cycle disorders; educating health care professionals concerning the diagnosis and treatment of these disorders; and increasing public awareness. Urea cycle disorders are rare genetic disorders in which an enzyme deficiency causes an excessive accumulation of ammonia in the blood. Established in 1989, the National Urea Cycle Disorders Foundation is also committed to promoting and supporting medical research; networking families to promote the exchange of mutual support, information and resources; and educating legislators on the needs of affected families. In addition, the foundation provides appropriate referrals; engages in patient, professional, and community education; and offers educational and supportive information through its national database, directory, biannual newsletter, brochures, and pamphlets. The foundation's goals include creating a national network of families who together can stimulate medical research activities and eventually find a cure for urea cycle disorders.

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