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NBIA Disorders Association


Address

2082 Monaco Court
El Cajon, CA 92019-4235

Phone

6195882315

Fax

6195884093

Email Address

info@nbiadisorders.org

Description

The NBIA Disorders Association (formerly Hallervorden-Spatz Syndrome Association) is a non-profit voluntary organization founded in 1996 and dedicated to families affected by neurodegeneration with brain iron accumulation and related disorders. NBIA is a rare genetic, neurological movement disorder characterized by the progressive degeneration of the nervous system due to iron deposits in the brain. NBIA Disorders Association has four main goals: raising funds to further research on the disease; providing emotional support to families affected by NBIA; educating the public about NBIA; and monitoring ongoing NBIA research and informing others of research findings and progress. The association publishes a self-titled periodic newsletter; maintains an NBIA Networking Program; and publishes an educational brochure on NBIA.

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