The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.
3568 Dodge Street
Omaha, NE 68131-3222
The Nebraska Family Support Network (NFSN), a voluntary non-profit advocacy organization, was established in 1988 by a group of parents who identified the need to develop support and referral services closer to home for families of children with mental illness, serious emotional disturbances, and behavioral disorders. The Network, which now consists of approximately 2,500 members, is dedicated to providing support to families of children with or at risk for a mental, emotional, or behavioral disorder; promoting an integrated "system of care" for affected children and their families; and promoting awareness of the needs of affected children among the general public and health care professionals. The Nebraska Family Support Network works collaboratively with other family support organizations across the state for the purposes of information sharing, resource exchange, advocacy, service development, and policy/legislation review. The Network also offers a 24-hour toll-free telephone support line for statewide access for parents and professionals; serves as a referral mechanism for families to link with appropriate support groups in or near their communities; and offers networking services to affected families, enabling them to exchange mutual support, information, and resources. In addition, the Network provides advocacy services upon requests from families, physicians, or special educators; develops programs to educate families and professionals about the needs of children and adolescents with emotional, behavioral, or mental disorders; and conducts regular workshops to help parents become more effective participants in their children's treatment when working with Medicaid or Medicaid Managed Care providers. The Nebraska Family Support Network also has a lending library with print and video resource materials and publishes a quarterly newsletter for families and professionals that regularly includes commentary, support group locations, behavioral and mental health information updates, and legislative/regulatory updates concerning changes that may affect affected families' access to required services.
The National Organization for Rare Disorders (NORD) web site, its databases, and the contents thereof are copyrighted by NORD. No part of the NORD web site, databases, or the contents may be copied in any way, including but not limited to the following: electronically downloading, storing in a retrieval system, or redistributing for any commercial purposes without the express written permission of NORD. Permission is hereby granted to print one hard copy of the information on an individual disease for your personal use, provided that such content is in no way modified, and the credit for the source (NORD) and NORD’s copyright notice are included on the printed copy. Any other electronic reproduction or other printed versions is strictly prohibited.
NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.