The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.
P.O. Box 957672
Hoffman Estates, IL 60195 USA
The Neuroblastoma Children's Cancer Society is a non-profit, voluntary organization dedicated to significantly accelerating potential cures for neuroblastoma and related children's cancers, and to improving the quality of life of affected individuals and their families. The organization is an advocate for children and their families and is dedicated to providing support in the following ways: promoting research by highly trained medical professionals; providing research grant awards to medical specialists locally and nationwide; educating healthcare professionals on early detection and the latest advances in treatments and diagnosis; maintaining updated information on current treatment and diagnosis; and providing a resource booklet that lists non-profit organizations and other resources that offer support for affected families. Consisting of 500 members, the society produces educational materials including a resource handbook and a newsletter.
The National Organization for Rare Disorders (NORD) web site, its databases, and the contents thereof are copyrighted by NORD. No part of the NORD web site, databases, or the contents may be copied in any way, including but not limited to the following: electronically downloading, storing in a retrieval system, or redistributing for any commercial purposes without the express written permission of NORD. Permission is hereby granted to print one hard copy of the information on an individual disease for your personal use, provided that such content is in no way modified, and the credit for the source (NORD) and NORD’s copyright notice are included on the printed copy. Any other electronic reproduction or other printed versions is strictly prohibited.
NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.