Neurofibromatosis Network

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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

Address

213 S. Wheaton Ave.
Wheaton, IL 60187 USA

Phone

6305101115

Fax

6305108508

800 Number

8009426825

Email Address

admin@nfnetwork.org

Website

http://www.nfnetwork.org

Description

The Neurofibromatosis, Inc., is a national, voluntary, non-profit organization dedicated to providing information, support, and advocacy to individuals and family members affected by neurofibromatosis type I (NF1) and type II (NF2). NF1 is a genetic disorder characterized by the development of multiple benign tumors on the covering of nerve fibers and the appearance of brown spots and freckles on the skin. NF2 is a rare genetic disorder characterized by the development of benign tumors on both auditory nerves and in other areas of the body. Established in 1988, Neurofibromatosis, Inc., services the needs of affected individuals through coordinated educational, support, and clinical and research programs. The organization provides information about NF1 and NF2 to affected individuals, family members, healthcare and other professionals, and the general public; provides referrals to local medical resources; and assists in identifying community support services. Neurofibromatosis, Inc., also encourages and supports research.

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