The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.
44 Holland Avenue
Albany, NY 12229
The New York State Office for People with Developmental Disabilities is a non-profit research organization and clinical facility dedicated to investigating the cause, treatment, and prevention of developmental disabilities. Established in 1967, the Institute, which is the research arm of the New York State Office of Mental Retardation and Developmental Disabilities, conducts basic and clinical research; offers educational programs; and operates an outpatient clinic where individuals with developmental disorders can be referred for tertiary evaluations. The New York State Institute for Basic Research in Developmental Disabilities also provides genetic counseling, gives appropriate referrals, and offers a variety of educational and supportive information through its database, journal, reports, and brochures.
The National Organization for Rare Disorders (NORD) web site, its databases, and the contents thereof are copyrighted by NORD. No part of the NORD web site, databases, or the contents may be copied in any way, including but not limited to the following: electronically downloading, storing in a retrieval system, or redistributing for any commercial purposes without the express written permission of NORD. Permission is hereby granted to print one hard copy of the information on an individual disease for your personal use, provided that such content is in no way modified, and the credit for the source (NORD) and NORD’s copyright notice are included on the printed copy. Any other electronic reproduction or other printed versions is strictly prohibited.
NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.