The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.
PO Box 14-313,
Kilbirnie, Wellington 6241, NZ
+64 4 385 1119
Rare Disorders NZ is the respected voice of rare disorders in New Zealand, and is the only national organisation supporting all New Zealanders who live with a rare condition, and the people who care for them. RDNZ offers a platform and connector hub to link people to information and rare disorder support groups specific to their disorder, and helps people navigate the health system. RDNZ provides a strong, unified voice to advocate for public health policy and a future healthcare system that works for those with rare disorders. We work with the Government, clinicians, researchers and industry to promote diagnosis, treatment, services and research. RDNZ continues to advocate for a national framework for rare disorders in New Zealand.
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NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.