Scroll
To Top
0-9 A B C D E F G H I J K L M N O P Q R S T U V W X Y Z

*Important

The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.


Nystagmus Network (UK)


Address

13 Tinsley Close
Claypote
Nottinghamshire, NG23 5BS United Kingdom

Phone

2920454242

800 Number

8456342630

Email Address

info@nystagmusnet.org

Description

The Nystagmus Network is an international, self-help organization in the United Kingdom dedicated to providing information, support, and resources to individuals with nystagmus, a condition characterized by involuntary movements of the eyes. In most cases, individuals with nystagmus experience associated visual impairment (e.g., moderate to severe reduction in visual acuity, variable vision, slowness in seeing and limited vision in certain gaze directions). Nystagmus is often apparent at birth (congenital) and may be an isolated condition or may occur due to or in association with other visual abnormalities or a variety of underlying disorders. In other cases, nystagmus may develop later in life due to certain injuries, diseases, or disorders. The Nystagmus Network was established in 1984 and currently has over 500 members in the United Kingdom and other countries. The network's activities and services include email support for affected individuals and family members; conducting regular meetings and seminars throughout the United Kingdom; responding to e-mail inquiries; and promoting and supporting research concerning the treatment of nystagmus. The organization also provides guidelines for teachers; publishes a regular newsletter entitled "FOCUS"; and offers additional publications.

Please Note

The National Organization for Rare Disorders (NORD) web site, its databases, and the contents thereof are copyrighted by NORD. No part of the NORD web site, databases, or the contents may be copied in any way, including but not limited to the following: electronically downloading, storing in a retrieval system, or redistributing for any commercial purposes without the express written permission of NORD. Permission is hereby granted to print one hard copy of the information on an individual disease for your personal use, provided that such content is in no way modified, and the credit for the source (NORD) and NORD’s copyright notice are included on the printed copy. Any other electronic reproduction or other printed versions is strictly prohibited.

NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.