PACS1 Syndrome Research Foundation

The PACS1 Syndrome Research Foundation is a 501(c)(3) private foundation whose mission is to find treatments and a cure for PACS1 Syndrome. The Foundation funds scientific research to accelerate treatments for PACS1 Syndrome, a rare neurodevelopmental disorder characterized by intellectual and developmental delay, epilepsy, and language impairment affecting approximately 250 children worldwide. The PACS1 Syndrome Foundation prioritizes research projects and initiatives that are most likely to help advance the approval of novel treatments and expedite clinical trials.