PFIC Advocacy and Resource Network, Inc.

PFIC Advocacy and Resource Network was founded in 2018 by 3 mothers of PFIC patients. Our mission is to improve the lives of patients and families worldwide affected by Progressive Familial Intrahepatic Cholestasis. We strive to equip patients and families with the educational and support resources they need to navigate life with a devastating disease, create a sense of community & hope for those affected by PFIC, and to support research that will one day lead to a cure. While PFIC Network is based in the United States, we serve a global population and provide resources for patients and families all over the world.