The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.
We are a nonprofit-organization aimed at fostering breakthrough research that make an important difference in the lives of patients and their family members. Our actions are performed at the national and international level. The Portuguese Association for CDG and other Rare Metabolic Diseases (APCDG-DMR) vision is developed from the belief of its founder that to achieve the hopes of patients and families who suffer from rare diseases, key stakeholders need:
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