The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.
PO Box 8478
Derby, DE1 9HT United Kingdom
PWSA UK is the only organisation within the UK supporting every person living with or affected by PWS. It is our mission to ensure that all have access to the same high level of good quality care, opportunity and support, and the people delivering care, opportunity, support and research towards a cure have the knowledge, training, resource and support to do so in order to cure the challenges of life with PWS.
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NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.