Project 8p Foundation

Project 8p Foundation is a 501(c)(3) nonprofit organization founded by a parent of a child with a chromosome 8p rearrangement. Our mission is to empower a unified community for chromosome 8p heroes to live meaningful lives today while accelerating treatments for tomorrow. We support scientific innovation, patient-centered care, and open collaboration across research disciplines to drive therapeutic discovery in rare and complex diseases.
Project 8p Foundation is a 501(c)(3) nonprofit organization established in late 2018. We are researching 8p disorders to find treatment options and give meaningful answers to those affected and their families. Our mission is to empower a unified community for chromosome 8p heroes to live meaningful lives today while accelerating treatments for tomorrow. We are patient-led and open science. Currently, there is no cure for 8p disorders, nor is there a standard course of treatment. We support scientific innovation, patient-centered care, and open collaboration across research disciplines to drive therapeutic discovery in rare and complex diseases. Project 8p is committed to translating this research into medicines and aspires to scale learnings to other complex neurological chromosome diseases.