The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.
Ground Floor CAN Mezzanine
49-51 East Rd
London, N1 6AH United Kingdom
The RADAR is a national network of disability organisations and disabled people. We represent our members by fast-tracking your opinions and concerns to policy-makers and legislators in Westminster and Whitehall, and launching our own campaigns to promote equality for all disabled people. Formed in 1977 as the Royal Association for Disability and Rehabilitation, RADAR is a national organisation run by and working for disabled people. We have a membership of over 800 disability organisations and individuals. RADAR is the UK's leading pan-disability charity working to represent the need and expectations of over 11 million disabled people in the UK.
The National Organization for Rare Disorders (NORD) web site, its databases, and the contents thereof are copyrighted by NORD. No part of the NORD web site, databases, or the contents may be copied in any way, including but not limited to the following: electronically downloading, storing in a retrieval system, or redistributing for any commercial purposes without the express written permission of NORD. Permission is hereby granted to print one hard copy of the information on an individual disease for your personal use, provided that such content is in no way modified, and the credit for the source (NORD) and NORD’s copyright notice are included on the printed copy. Any other electronic reproduction or other printed versions is strictly prohibited.
NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.