Rare Birds Foundation

The mission of Rare Birds Foundation is to support families living with Adenylosuccinate Lyase Deficiency Disorder (ADSLD) and related purine disorders. Through collaborative research efforts putting patient experience first, we search for treatments to improve quality of life and advance understanding of this ultra-rare disorder. We support families through respite retreat grants as well as “need” grants for people living with ADSLD. We also extend our wings to families and patients living with other related purine disorders, understanding that some patient populations may be too small to warrant a stand-alone advocacy group.