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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

Rare Diseases Clinical Research Network


Cincinnati Children’s Hospital Medical Center
3333 Burnett Avenue, MLC 5041
Cincinnati, OH 45229 USA





800 Number


Email Address

[email protected]


The Rare Diseases Clinical Research Network (RDCRN) is an initiative of the Office of Rare Diseases Research (ORDR) at the National Institutes of Health’s National Center for Advancing Translational Sciences (NCATS).  Established by Congress under the Rare Diseases Act in 2002, RDCRN fosters collaborative research among scientists to better understand how rare diseases progress and to develop improved approaches for diagnosis and treatment. It currently funds research across 23 active consortia—national teams of researchers, patients and clinicians—focused on groups of rare disorders. The network, now in its fourth five-year funding cycle, is a partnership with funding and programmatic support provided by Institutes, Centers and Offices across NIH, including the National Institute of Allergy and Infectious Diseases, the Eunice Kennedy Shriver National Institute of Child Health and Human Development, the National Institute of Neurological Disorders and Stroke, the National Heart, Lung, and Blood Institute, the National Institute of Arthritis and Musculoskeletal and Skin Diseases, the National Institute of Diabetes and Digestive and Kidney Diseases, the National Institute of Dental and Craniofacial Research, the National Institute of Mental Health and the Office of Dietary Supplements.

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NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.