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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

Rare Diseases Denmark


Blekinge Boulevard 2
DK-2630 Taastrup
Denmark, Europe Denmark



Email Address

[email protected]


Rare Diseases Denmark (RDD) is an umbrella organization embracing 32 52 small organizations whose aim is to organize people with serious rare diseases. RDD also hosts the Network for Ultra Rare Diseases. Some of these organizations have hundreds of members. Others have only a few. Founded in 1985, KMS RDD advocates on behalf of people with rare disorders, working to make sure they have access to relevant care, resources and information.

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NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.