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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.


Rare Genomics Institute


Address

820 N Broadway
Baltimore, MD 21205

Phone

6504680650

Email Address

contact@raregenomics.org

Description

Rare Genomics Institute (RGI) is a non-profit organization that helps families and patient communities raise funds and create personalized research projects based on genome sequencing for individuals with rare diseases. They provide an online crowd-funding platform and social network; access to genomics researchers who conduct sequencing; and access to clinicians and genetic counselors who can help interpret the research findings. RGI’s services are available to individuals in the US and internationally.

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NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.