RareDNA Foundation

RareDNA Foundation is dedicated to improving outcomes for individuals and families affected by rare DNA heart mutations by advancing awareness, access, and action. We increase awareness among medical professionals and the public, provide education and resources on diagnosis and treatment, support scientific research, and advocate for faster diagnostic pathways—giving families the knowledge and care they need when every moment matters. Our goal is to ensure every individual with a rare DNA heart mutation, like PPA2, is diagnosed early, receives the care they need, and benefits from advances in research and medical knowledge.