The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.
8235 Lethbridge Road
Millersville, MD 21108 USA
The Rasmussen's Syndrome and Hemispherectomy Support Network is a national non-profit organization dedicated to providing information and support to individuals affected by Rasmussen's syndrome (Rasmussen's encephalitis) and hemispherectomy. Rasmussen's syndrome is a rare central nervous system disorder characterized by chronic active inflammation of the brain (encephalitis) and epileptic seizures of varying degrees of severity. Progressive symptoms including paralysis (usually of one side of the body) and mental retardation may also occur. Although the exact cause of this disorder is not known, it is thought to result from an unidentified viral infection. Hemispherectomy is a form of surgery commonly used in the treatment of Rasmussen's syndrome and other brain disorders. Founded in 1994 and comprised of 200 members, RSHSN publishes a periodic newsletter and disseminates reprints of medical journal articles concerning Rasmussen's syndrome and its treatments. RSHSN also maintains a support network that provides encouragement and information to individuals affected by Rasmussen's syndrome and their families.
The National Organization for Rare Disorders (NORD) web site, its databases, and the contents thereof are copyrighted by NORD. No part of the NORD web site, databases, or the contents may be copied in any way, including but not limited to the following: electronically downloading, storing in a retrieval system, or redistributing for any commercial purposes without the express written permission of NORD. Permission is hereby granted to print one hard copy of the information on an individual disease for your personal use, provided that such content is in no way modified, and the credit for the source (NORD) and NORD’s copyright notice are included on the printed copy. Any other electronic reproduction or other printed versions is strictly prohibited.
NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.