RASopathies Network

RASopathiesNet is the product of RASopathies Network USA, a 501c3 Non-Profit, and the RASopathies Network UK. Their goal is to grow a community of practice around RASopathies research. Their mission is to advance research to improve the quality of life for RASopathy families by bringing together clinicians, scientists, and families. RASopathies are a group of genetic syndromes that may be as common as 1:1000. The RASopathies Network advocates on behalf of all RASopathies, including cardio-facio-cutaneous (CFC), Costello (CS), Neurofibromatosis type 1 (NF1), Noonan (NS) and Noonan-like syndromes (NSML, NSLAH).