About RASopathies Network
RASopathiesNet is the product of RASopathies Network USA, a 501c3 Non-Profit, and the RASopathies Network UK. Their goal is to grow a community of practice around RASopathies research. Their mission is to advance research to improve the quality of life for RASopathy families by bringing together families, clinicians and scientists. RASopathies are a group of genetic syndromes that may be as common as 1:1000. The syndromes RASopathies Network focuses on include: cardio-facio-cutaneous (CFC), Costello (CS), LEOPARD/NSML, Neurofibromatosis type 1 (NF1), and Noonan (NS).