The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.
11 Topstone Road
Redding, CT 6896 USA
The Raynaud's Association is a non-profit organization dedicated to sharing information and help in coping with daily activities among individuals who are affected by Raynaud's disease and phenomenon. Raynaud's is a common vascular disorder characterized by episodes of constriction of very small blood vessels in the fingers, toes or other extremity. Symptoms may include numbness, tingling, and cold sensations in the fingers. The purpose of the association is to share information and to provide support in dealing with everyday activities, such as holding a cold glass of soda or shopping in the refrigerated section of a supermarket. Founded in 1992, the association also works to increase public awareness of Raynaud's disease and is active in patient recruitment for ongoing clinical trials and eventually funding for research. Consisting of over 1,500 members, the organization produces educational materials including the newsletter "Cold Cuts" and a brochure about the disease. In addition, the association coordinates a national networking program and holds informal support group meetings in the New York metropolitan area.
The National Organization for Rare Disorders (NORD) web site, its databases, and the contents thereof are copyrighted by NORD. No part of the NORD web site, databases, or the contents may be copied in any way, including but not limited to the following: electronically downloading, storing in a retrieval system, or redistributing for any commercial purposes without the express written permission of NORD. Permission is hereby granted to print one hard copy of the information on an individual disease for your personal use, provided that such content is in no way modified, and the credit for the source (NORD) and NORD’s copyright notice are included on the printed copy. Any other electronic reproduction or other printed versions is strictly prohibited.
NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.