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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.


Ring14 USA Outreach, Inc.


Address

P.O. Box 4394
Lafayette, IN 47903-0394

Phone

7654916910

Email Address

info@ring14usa.org

Description

Ring14 USA Outreach is a non-profit organization founded by a group of mothers whose children have Ring14 syndrome. We advocate for those affected by rare genetic disorders of the 14th chromosome, from the children who suffer from the symptoms to all the doctors, caregivers, friends, and family who help to care for these children every day. Our organization was inspired by our sister group, Ring14 Italy, which was founded in 2002. Our local organization partners with Ring14 to fund and promote international research collaboration, but we are also able to more effectively raise funds and provide local services like conferences and camps to families for whom extensive travel is not possible. We also work to spread public awareness about Ring14 and other disorders of the 14th chromosome, and to develop our own “Ring14? medical experts here in the States. Ring14 USA Outreach is based in California, but its directors come from all corners of the United States, and we provide support for those affected by 14th chromosomal disorders across North America.

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