The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.
PO Box 400
Tornillo, TX 79853
The Schiz Kidz Buddies - Schizencephaly Support Group is a web site for parents, other family members, physicians, therapists, and friends of children born with schizencephaly. Schizencephaly is a rare brain malformation due to improper development of the cerebral hemispheres of the brain during embryonic growth (neuronal dysmigration). Affected infants and children may have variable symptoms that may include seizure disorders, developmental delays, mental retardation, visual impairment, eating difficulties, and/or other symptoms. The Schizencephaly Support Group's web site provides general information on the condition, a variety of online networking opportunities, and dynamic links to additional sources of helpful information on the Internet.
The National Organization for Rare Disorders (NORD) web site, its databases, and the contents thereof are copyrighted by NORD. No part of the NORD web site, databases, or the contents may be copied in any way, including but not limited to the following: electronically downloading, storing in a retrieval system, or redistributing for any commercial purposes without the express written permission of NORD. Permission is hereby granted to print one hard copy of the information on an individual disease for your personal use, provided that such content is in no way modified, and the credit for the source (NORD) and NORD’s copyright notice are included on the printed copy. Any other electronic reproduction or other printed versions is strictly prohibited.
NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.