About Severe Chronic Neutropenia International Registry
Established in March of 1994, the Severe Chronic Neutropenia International Registry is a research organization supported by the NIH and directed by an advisory board of physicians who treat individuals with severe chronic neutropenia (SCN). Chronic neutropenia is a blood disorder in which the bone marrow produces a decreased number of certain white blood cells known as neutrophils. Abnormally low levels of neutrophils can cause affected individuals to become more susceptible to certain bacterial infections. The mission of the registry is to establish a worldwide database of treatment and disease related outcomes for individuals diagnosed with SCN. It is hoped that the information collected will lead to improved medical care and a focus for future medical research. The registry is international, serving patients and healthcare practitioners located in the United States, Canada, Europe, Australia, South America, Asia, and the Middle East.