The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.
8551 Boat Club Road
Fort Worth, TX 76179 USA
The Shaken Baby Alliance is a voluntary, non-profit, service and advocacy organization serving victim family members and professionals concerned about shaken baby syndrome (SBS). This syndrome occurs when a child is shaken back and forth in a "whiplash" motion so that delicate veins over the brain tear and bleed, causing pressure on the brain. The damaged brain begins to swell, and vital functions, such as heart rate and breathing, are affected. Many people do not realize the harm that can result from shaking an infant or young child. The goal of the alliance is to provide information and support to affected families, serve as advocates for victims, and provide educational services as a preventive measure. The alliance is international in scope, and provides brochures in English and Spanish.
The National Organization for Rare Disorders (NORD) web site, its databases, and the contents thereof are copyrighted by NORD. No part of the NORD web site, databases, or the contents may be copied in any way, including but not limited to the following: electronically downloading, storing in a retrieval system, or redistributing for any commercial purposes without the express written permission of NORD. Permission is hereby granted to print one hard copy of the information on an individual disease for your personal use, provided that such content is in no way modified, and the credit for the source (NORD) and NORD’s copyright notice are included on the printed copy. Any other electronic reproduction or other printed versions is strictly prohibited.
NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.