Siegel Rare Neuroimmune Association
About Siegel Rare Neuroimmune Association
The Siegel Rare Neuroimmune Association (formerly the Transverse Myelitis association — read more about the change here) is a not-for-profit dedicated to the support of children, adolescents, and adults with rare neuroimmune disorders. Our goal is to improve the quality of life of individuals with acute disseminated encephalomyelitis (ADEM), acute flaccid myelitis (AFM), MOG antibody-associated disease (MOG-Ab disease), neuromyelitis optica spectrum disorder (NMOSD), optic neuritis (ON), transverse myelitis (TM), and all other rare neuroimmune disorders. We connect individuals affected by rare neuroimmune disorders with each other, and with a network of medical professionals, researchers, and clinician-scientists. We care for all those affected by offering support, providing education and quality-of-life programs, and serving as an information resource on rare neuroimmune disorders. We advance the work of finding a cure by funding innovative research, training clinician-scientists, developing novel therapies, and investing in academic centers of excellence.