Sisters’ Hope Foundation

PO Box 12
Myerstown, Pennsylvania, USA


2024 Member

About Sisters’ Hope Foundation

The mission of Sisters’ Hope Foundation is to support and empower families impacted by Adult Onset Leukoencephalopathy with Axonal Spheroids and Pigmented Glia (ALSP) / Hereditary Diffuse Leukoencephalopathy with Spheroids and Pigmented Glia (HDLS) caused by mutation of the CSF1R gene by:
• educating the public to increase awareness around this rare disease
• advocating for further research and funding to improve treatment options
• connecting patients and families with this diagnosis to build community and support
• providing financial assistance and resources to those in need