To Top
0-9 A B C D E F G H I J K L M N O P Q R S T U V W X Y Z


The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

Sneddon Foundation (Stichting Sneddon)


P.O. Box 3123
Breda, The Netherlands




The Sneddon Foundation (Stichting Sneddon) was established because of the fact that people with Sneddon syndrome, as well as those with any other rare disease, face the same problem: many questions, few answers. The foundation educates and informations patients, their families, and the public about Sneddon syndrome, which is a rare progressive disorder characterized by the association of a skin disorder and neurological abnormalities. The foundation provides referrals to specialized hospitals, publishes a newsletter, and informs patients in English or Dutch about resources and developments related to Sneddon syndrome.

Please Note

The National Organization for Rare Disorders (NORD) web site, its databases, and the contents thereof are copyrighted by NORD. No part of the NORD web site, databases, or the contents may be copied in any way, including but not limited to the following: electronically downloading, storing in a retrieval system, or redistributing for any commercial purposes without the express written permission of NORD. Permission is hereby granted to print one hard copy of the information on an individual disease for your personal use, provided that such content is in no way modified, and the credit for the source (NORD) and NORD’s copyright notice are included on the printed copy. Any other electronic reproduction or other printed versions is strictly prohibited.

NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.