Sneddon Foundation (Stichting Sneddon)

The Sneddon Foundation (Stichting Sneddon) was established because of the fact that people with Sneddon syndrome, as well as those with any other rare disease, face the same problem: many questions, few answers. The foundation educates and informations patients, their families, and the public about Sneddon syndrome, which is a rare progressive disorder characterized by the association of a skin disorder and neurological abnormalities. The foundation provides referrals to specialized hospitals, publishes a newsletter, and informs patients in English or Dutch about resources and developments related to Sneddon syndrome.