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Society for Mucopolysaccharidoses and Related Disorders


Address

Finklham 90
Breitenaich, 4075 Austria

Phone

43724947795

Fax

43724947795

Email Address

office@mps-austria.at

Description

The Gesellschaft für Mukopolysaccharidosen und ähnliche Erkrankunhen which translates to Society for Mucopolysaccharidoses and Related Disorders support and individual advocacy for families of MPS children and young adults in Austria. This voluntary, non-profit, self-help organization, which has approximately 200 members, organizes an annual family conference and other events. It raises money to promote research and make therapy possible. The Mucopolysaccharidoses are a group of hereditary lysosomal storage diseases. Deposits of mucopolysaccharides in the arteries, skeleton, joints, eyes, ears, skin, and teeth, and in the cardiovascular, respiratory, and central nervous systems characterize them.

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