To Top
0-9 A B C D E F G H I J K L M N O P Q R S T U V W X Y Z


The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

Society for Muscular Dystrophy Information International


P.O. Box 7490
Nova Scotia, B4V 2X6 Canada






The Society for Muscular Dystrophy Information International (SMDI) is a non-profit registered Canadian charity dedicated to assisting people in helping themselves by reducing the national and international isolation of individuals and organizations concerned with neuromuscular disorders/disabilities. In general, "neuromuscular disorder" is a term used to describe a group of over 50 diseases affecting the body's motor neurons (nerves and muscles). Symptoms may include varying degrees of progressive muscle weakness and loss of muscle mass (wasting). SMDI was established in 1983 to provide a non-technical information link for individuals with neuromuscular disorders and for organizations around the world; to link people with other people and organizations concerned with their disorder; to share information to assist people in helping themselves; and to create increased public awareness of this group of disorders.

Please Note

The National Organization for Rare Disorders (NORD) web site, its databases, and the contents thereof are copyrighted by NORD. No part of the NORD web site, databases, or the contents may be copied in any way, including but not limited to the following: electronically downloading, storing in a retrieval system, or redistributing for any commercial purposes without the express written permission of NORD. Permission is hereby granted to print one hard copy of the information on an individual disease for your personal use, provided that such content is in no way modified, and the credit for the source (NORD) and NORD’s copyright notice are included on the printed copy. Any other electronic reproduction or other printed versions is strictly prohibited.

NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.