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Sturge-Weber Foundation





800 Number


Email Address

[email protected]


The Sturge-Weber Foundation (SWF) is a non-profit, 501(c)3 organization for parents, professionals, and others concerned with port wine stains, Sturge-Weber syndrome (SWS), and Klippel-Trenaunay (KT) syndrome. A congenital disorder of unknown cause, SWS is characterized by facial discoloration and neurological abnormalities. Established in 1987, the Sturge-Weber Foundation is dedicated to acting as a clearinghouse for information on all aspects of port wine stain conditions and Sturge-Weber syndrome, and offering support to all interested parties. The group seeks to educate the medical community, government agencies, and the general public; promote the funding of ongoing medical research; and establish a registry of affected individuals. The Sturge-Weber Foundation provides appropriate referrals and offers a variety of educational and support materials. These include a resource guide, medical articles, and brochures on all aspects of Sturge-Weber syndrome. Other educational resources available from the foundation include booklets, physical recommendation papers, a newsletter, and monthly enews.

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