The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.
2218 Boulder Dr.
Normal, IL 61761
The Taylor Bug Kisses Foundation is a non-profit, voluntary organization whose mission is to provide financial assistance and emotional support to individuals with Smith-Magenis syndrome and their families. They also help with funding research for Smith-Magenis syndrome, educating and raising awareness. Smith-Magenis syndrome is a microdeletion syndrome that occurs when there is a missing piece of chromosome on the short arm of chromosome 17 (17p11.2). Smith-Magenis syndrome is characterized by particular facial features, developmental delays, intellectual disabilities and behavioral abnormalities.
The National Organization for Rare Disorders (NORD) web site, its databases, and the contents thereof are copyrighted by NORD. No part of the NORD web site, databases, or the contents may be copied in any way, including but not limited to the following: electronically downloading, storing in a retrieval system, or redistributing for any commercial purposes without the express written permission of NORD. Permission is hereby granted to print one hard copy of the information on an individual disease for your personal use, provided that such content is in no way modified, and the credit for the source (NORD) and NORD’s copyright notice are included on the printed copy. Any other electronic reproduction or other printed versions is strictly prohibited.
NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.