The Kentuckiana Connective Tissue Foundation

The Kentuckiana Connective Tissue Foundation (TKCTF) is a qualified 501(c)(3) tax-exempt organization (EIN: 99-4789427). We are dedicated to providing education, support, and aid in making genetic testing more accessible, ensuring that no one faces their journey alone. Our board is composed entirely of individuals diagnosed with hypermobile Ehlers-Danlos Syndrome (hEDS), giving us a firsthand understanding of the unique challenges our community faces. We have also successfully run the local Kentuckiana EDS Support Group for over a decade.