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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.


The Myelin Project



Address

P.O. Box 39
Pacific Palisades, CA 94122 USA

Phone

1-800-869-3546

Email Address

info@myelin.org

Description

We are a 501(c)3 non-profit organization focused on improving the quality of life for those living with ALD and AMN through research, advocacy and family support. We believe we can accomplish our mission by pursuing the following initiatives to:

-fund research to advance treatment and to find a cure
-raise awareness, and promote education
-advocate for newborn screening
-provide financial support to low-income families


Facebook: https://www.facebook.com/TheMyelinProject/?ref=ts
Twitter: https://twitter.com/Myelin_Project

#SaveTheBoys

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