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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.


Tracheo Oesophageal Fistula Support


Address

St. George's Centre
91 Victory Road
Nottingham, NG4 2NN United Kingdom

Phone

4401159613092

Fax

4401159613097

Email Address

info@tofs.org.uk

Description

The Tracheo Oesophageal Fistula Support (TOFS) is an international, voluntary organization dedicated to providing information and support to parents who have a child born with tracheo-esophogeal fistula (TOF). In TOF, a section of the baby's throat is abnormally joined to the windpipe (esophagus) making it difficult for food and saliva to pass into the stomach. Established in 1982, TOFS consists of a family membership and a national network of volunteers, all of whom are parents of children with TOF. The support group receives calls from affected families and professionals; maintains contact with sister organizations in other countries; and maintains a databank of information on matters such as feeding problems, tube feeding, and financial assistance. A video has been produced that explains the condition and the problems affecting children with TOF. In addition, TOFS raises funds to support its own work, to purchase equipment for hospitals and individuals, and to finance research. Support groups for affected individuals, family members, and healthcare professionals are provided along with educational materials. A national conference for members and professionals is organized every two years. Fund-raising is undertaken to assist hospitals to purchase specialized equipment.

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