The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.
32 Francemary Road
London, SE4 1JS United Kingdom
The Triple X Support Group is a voluntary, self-help organization dedicated to providing support, resources, and informational materials to parents of children with triple X syndrome. Also known as trisomy X or 47, XXX syndrome, triple X syndrome is a chromosomal disorder that affects females. Females normally have two X chromosomes; however, females with triple X syndrome carry three X chromosomes in cells of the body. Associated symptoms and findings may vary greatly from case to case. Whereas some affected females have very few associated symptoms, others may have physical abnormalities, delayed speech and motor skills, learning disabilities, and/or behavioral abnormalities. The Triple X Support Group was established in 1997 and currently consists of 290 families. The group provides reprints from the medical literature concerning triple X syndrome as well as brochures that describe the chromosomal disorder in lay terminology. The organization also puts affected families in touch with one another, promoting the exchange of mutual support, experiences, information, and resources.
The National Organization for Rare Disorders (NORD) web site, its databases, and the contents thereof are copyrighted by NORD. No part of the NORD web site, databases, or the contents may be copied in any way, including but not limited to the following: electronically downloading, storing in a retrieval system, or redistributing for any commercial purposes without the express written permission of NORD. Permission is hereby granted to print one hard copy of the information on an individual disease for your personal use, provided that such content is in no way modified, and the credit for the source (NORD) and NORD’s copyright notice are included on the printed copy. Any other electronic reproduction or other printed versions is strictly prohibited.
NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.