TSC Alliance

The TSC Alliance improves quality of life for everyone affected by tuberous sclerosis complex (TSC) by catalyzing new treatments, driving research toward a cure and expanding access to lifelong support. TSC causes tumors to grow in different organs and can impair their function, primarily the brain, heart, kidneys, skin, eyes and lungs. Changes in the brain caused by TSC have the biggest impact on quality of life, from seizures and developmental delays to intellectual disabilities, behavioral challenges and autism. The TSC Alliance is committed to promoting and sponsoring medical research related to the diagnosis, cause, management, and cure of TSC, and ensuring that affected individuals and families have access to appropriate medical services, support services, and resource information. It is involved in the development of public and professional educational programs aimed at increasing awareness of TSC and prompting early diagnosis and effective treatment.