About Tuberous Sclerosis Canada Sclerose Tubereuse
The Tuberous Sclerosis Canada Sclerose Tubereuse (TSCST) is a non-profit organization dedicated to raising public awareness of tuberous sclerosis complex (TSC); encouraging mutual support between families affected by TSC and promoting research and education. TSC is a congenital disease characterized by certain skin abnormalities and birthmarks, tuber-like growths in the eyes, the brain, heart, kidneys, and other internal organs, and varying severity of epilepsy and mental retardation. Established in 1990, TSC facilitates a self-help network in which families affected by tuberous sclerosis support one another by telephone and share information about local services that may be available. Educational materials are available in French and English.