Scroll
To Top
0-9 A B C D E F G H I J K L M N O P Q R S T U V W X Y Z

*Important

The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.


Turner Syndrome Global Alliance


Address

10708 W 129th St
Overland Park, KS 66213 USA

Phone

919-539-8064

Email Address

TSGA@TSGAlliance.org

Description

Turner Syndrome Global Alliance (TSGA) was founded in 2014 with a mission to connect science, resources, and funding to the Turner syndrome community.  Turner syndrome (TS) is a genetic disorder that affects 1 of every 2,000 females and occurs when a female is missing all or part of her 2nd X chromosome.  Founded by parents of girls and young women with Turner syndrome, TSGA is a voice for the patient and parent perspective as we seek collaboration with scientists, researchers, and doctors to ensure that TS research and resources have meaningful outcomes. Facebook: https://www.facebook.com/TSGAlliance/

Please Note

The National Organization for Rare Disorders (NORD) web site, its databases, and the contents thereof are copyrighted by NORD. No part of the NORD web site, databases, or the contents may be copied in any way, including but not limited to the following: electronically downloading, storing in a retrieval system, or redistributing for any commercial purposes without the express written permission of NORD. Permission is hereby granted to print one hard copy of the information on an individual disease for your personal use, provided that such content is in no way modified, and the credit for the source (NORD) and NORD’s copyright notice are included on the printed copy. Any other electronic reproduction or other printed versions is strictly prohibited.

NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.