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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.


United States Adult Cystic Fibrosis Association, Inc.


Address

P.O.Box 1618
Gresham, OR 97030-0519

Phone

5036693561

Email Address

cfroundtable@usacfa.org

Description

The United States Adult Cystic Fibrosis Association, Inc. (USACFA) is a voluntary, non-profit organization whose mission is to publish a quarterly newsletter to facilitate the exchange of information among adults with cystic fibrosis (CF), foster a nationwide network of support groups for adults with CF, and sponsor/collaborate on regional conferences in the United States for the exchange of information between the medical and research community and adults with CF. Cystic fibrosis is a genetic disease in which, because of a defective gene, mucus-secreting glands within the lining of the lung’s airways (bronchi) produce unusually thick, sticky secretions. This clogs the air passages, promotes bacterial growth, and leads to chronic obstruction, inflammation, and infection of the airways. These thick secretions also obstruct the pancreas, keeping digestive enzymes from reaching the intestines to help break down and absorb food.

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