VEXAS Global Foundation

The VEXAS Global Foundation is a patient-focused nonprofit committed to improving the lives of those affected by VEXAS syndrome—a recently discovered and often misunderstood autoinflammatory disease. Our mission is to foster hope and progress for the VEXAS community through connection, education, research, and advocacy. We are:
— Building the first international patient registry in partnership with NORD
— Developing online portals to facilitate engagement among patients, caregivers, and medical professionals
— Sharing patient stories, coping strategies, and research
— Advocating for early testing and diagnosis.