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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.


Williams Syndrome Family of Hope


Address

PO Box 2144
Tifton, GA 31793

Phone

2292569545

Email Address

info@wsfamilyofhope.org

Description

The Williams Syndrome Family of Hope, Inc. is a grassroots non-profit organization that was formed by families for families. Their mission is to provide support, resources, education and financial assistance to those affected by Williams syndrome. They are also dedicated to educating physicians, therapists and educators as well as raising public awareness about Williams syndrome and its effects on the individual and their family. Williams syndrome is a genetic disorder characterized by growth delays before and after birth (prenatal and postnatal growth retardation), short stature, a varying degree of mental deficiency, and distinctive facial features that typically become more pronounced with age.

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