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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.


Wilson Disease Association


Address

5572 N Diversey Blvd
Milwaukee, WI 53217 USA

Phone

4149610533

Fax

4149623886

TDD

5407431415

Email Address

info@wilsondisease.org

Description

Wilson Disease Association (WDA) is non-profit organization dedicated to providing information and support to people with Wilson's disease, a rare inherited disorder of copper metabolism in which copper abnormally accumulates in the liver and is slowly released into other tissues and organs of the body. As this disorder progresses, abnormal copper accumulation may cause liver disease such as inflammation of the liver (hepatitis) and cirrhosis; diminished kidney function; and abnormalities of brain function resulting in muscle rigidity, tremors, speech difficulties, impaired memory and judgment, multiple psychiatric symptoms which often include aggressiveness, hostility, inappropriate behavior, poor school and work performance and distinct personality changes (dementia). The Wilson's Disease Association makes referrals to physicians for appropriate diagnosis and treatment, to genetic counseling, and to support groups. The association also engages in patient and professional education; promotes public awareness of Wilson's disease; conducts annual conferences; and offers educational and support information through its database, directory, regular newsletter, and brochures.

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