The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.
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The World Life Foundation (WLF) is a voluntary, non-profit, domestic and international information network dedicated to supporting the study of rare metabolic disorders. Established in 1992, the foundation believes that networking among physicians, researchers, and affected individuals and families is critical to improving clinical care and the understanding of rare metabolic diseases. The foundation disseminates information to affected individuals and/or family members; assists in fulfilling the needs of affected families related to ground/air transportation to treatment centers; and publishes a regular newsletter.
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NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.